While it can’t cure them, a new treatment for cystic fibrosis has literally changed the lives of patients by reducing the effects of the disease. But not everyone can benefit from it. Its effects are spectacular said David Fiant, president of thewho was one of the first to try it.
Kaftrio, from the US laboratory Vertex, is part of an innovative class of drugs against this genetic disease, which inexorably deteriorates the respiratory and digestive systems and used to be fatal for children and adolescents. Reimbursed in France for a year, it is considered by the associations as a revolution capable, for some patients, of transforming the in chronic and stabilized pathology.
A first victory over the disease
” Just before starting Kaftrio, I was on oxygen therapy, waiting for a lung transplant, said David Fiant, 40. Six hours of daily care (physiotherapy, sprays, etc.), three to four weeks of infusions a year: I no longer knew if I lived to treat myself or if I treated myself to live “.
” I took a first dose of medicine one morning; at 3 in the afternoon I felt the first effects “, he continues. For the first time in years, he was able to” take a shower alone “, of ” climb 15 steps at a time “and especially” accompany (his) daughter to buy comics “.
When his doctor examines him soon after, ” hear the air circulate in your lungs. he wasn’t the one yet…